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t.o.f. baby

Duration: :50 minutes
Accession No: TWCMS : 2009.294
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Summary
John talks about being born with tof- tracheo oesophageal fistula. He describes how he has beaten it and now lives life to the full

By John Kenny

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This story was inspired by baby clothes on display at the Museum of Hartlepool


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Video transcript

When I was born I had to go to Newcastle to get an operation on my stomach because I was a tof baby.   A tof baby is someone who is born with their food pipe doesn't reach their stomach, so I had to go to Newcastle to get an operation on it. Many people with my condition die within 3 to 4 hours of birth.

I was lucky. If it wasn't for the head surgeon, I don't think I'd be alive today. When my mam told me this, I now live life to the full.  

what a brave, clever boy you are John, your parents must be really proud to have you for a son.Posted on 23/11/2009 at 03:25:36

My grandson was born a tof baby, we were really scared and didnt know what to expect, he went through a six hr op when he was 1 hr old and is now 6 weeks old and just come out of hospital and feeding well through a bottle, we dont know what the future will hold for him but i hope he is as happy and inspirational as youPosted on 01/06/2011 at 10:17:46

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